Logo
Search
Archive
Explore
About
Support IOMK
Login
Get IOMK
Logo

People with EDS

People living with Ehlers-Danlos syndromes

Perspective

+3

A diagnosis can bring more than one feeling

Oct 30, 2026

•

1 min read

A diagnosis can bring more than one feeling

If one more person knew that receiving an explanation for longstanding experiences can bring relief and complicated emotions at the same time.

People with EDS

+3

Being able to push through does not tell you whether it was sustainable

Oct 30, 2026

•

1 min read

Being able to push through does not tell you whether it was sustainable

If one more person knew that completing an activity and comfortably sustaining that level of activity are different questions

Participation

+3

Asking for an accommodation is not the same as giving up

Oct 29, 2026

•

1 min read

Asking for an accommodation is not the same as giving up

If one more person knew that changing how something is done can sometimes preserve participation in it

If One More Knew

If one more person knew one more thing, the EDS journey could be better.

Medical & Content Disclaimer

Terms of Use

Privacy Policy

If One More Knew provides information and awareness about EDS and related experiences. Our content is for educational purposes and is not medical advice, diagnosis, or treatment. Medical decisions should be made with an appropriate healthcare professional.

© 2026 If One More Knew.
beehiivPowered by beehiiv